February 24, 2006

Medical Update II

My medical schedule has some better visibility. I stopped by the chemical oncologist to get my Aranesp shot. It’s to boost my hemoglobin count.

I think my hemoglobin count is fine. I’m just feeling too well for it to be otherwise. While there, I spoke to the scheduler and had my next appointment rescheduled for later in the day. Previously I had my radio oncologist scheduled for 13:00 on March 1. I was told it would be at least 1.5 hours, as they have to “mark me.” I already had an appointment with my chemical oncologist for 14:45. I knew there was no way I could do both.

When I tried to reschedule my chemical oncologist the girl told me he was booked solid for the whole month of March. When I tried to reschedule the radio oncologist, I was told it would push my date back to March 6. I don’t want to delay the radiation treatment.

A physical body is harder to ignore than a voice on the phone. When I told the chemical oncologist’s scheduler of my conflict, they readily pushed my time back to 16:15. That should work out fine.

I’m afraid I was less than my usual charming self at the oncologist's office today. I was feeling really frustrated with my inability to get what I wanted and I was in almost full Type-A mode when I walked in the door. It has now been over three weeks since my last chemo treatment and I am feeling very strong.

I’m probably going to have to make a small apology to them. I was ready to knock heads. I do have on “in” so to speak. One of the girls that works at the oncologist’s office is the sister-in-law to the girl that works with me in my office. Should I call her the Vorlon Assistant?

When I meet with the oncologist, I’m going to see if I can some visibility for chemo schedule in the future.

Oh, I’m also going to take a copy of the MRI on CD with me when I got to the radio oncologist next week. You never know if they’ll want it and not have it.

More and more I’m agreeing with Stephen Schneider, you need to stay on top of these people. It’s a lot like trying to herd cats. I don’t know how a passive person can survive in this system.

Posted by The Vorlon at February 24, 2006 3:55 PM
Comments

We are glad that you read Stephen Schneider's book "A Patient from Hell". At least it seems to give you the incentive to push for the treatments that you need. Congratulations on the shinking of the lung tumor. We pray that the
radiation will do the same for the brain tumors.
Keep up the good work.

Posted by: Mother at February 24, 2006 8:33 PM

I believe you have to be your own advocate in nearly thing today, but espcially in health care. I am sure your toastmaster skills have been very valuable. Glad to hear you are feeling so well.

Posted by: Dennis at February 25, 2006 9:47 AM

I think Dennis said it all.

Posted by: Reb Orrell at February 27, 2006 1:28 PM