October 3, 2006

October 3 Final Update

Today was about the same as yesterday. I’m not feeling too badly. I just feel like I need a nap.

I’ve picked up a couple of Lbs. I’m up to 154 Lbs. I think the Tastykakes are helping. I’ve got two more days to get as many calories into my body as possible before I get poisoned.

Every time I meet with my oncologist, I can’t remember what to report. So I sent him a fax. Well, I’ve scheduled it to go out tomorrow morning. I don’t want it just sitting on his fax machine. I want it to be received while someone is in the office. I figure it’ll get more attention that way.

Doctors don’t seem to do email, but they all have fax machines. Since I have a modem in my computer, I can fax as easily as I can email. I figure, if the get a fax from you they are probably required by law to read it and put it in your file.

Here’s what I sent to him.

I had the Doppler exam at CDI. The tech said everything looked good. I also went to Dr. Pilet. He said it is something called Lattice Degeneration. I asked if it was due to the chemo. He said he thought not as he has customers with the same condition and they are perfectly healthy. The condition seems to afflict about 10 percent of the US population.

I remain unconvinced, even though he said he could see it in my right eye. I notice the effect in my eye about the same time in my chemo cycle. But you know just how stubborn I can be, and I’m not even from Missouri – the Show Me state. My parents tell me it’s from my German and Scottish ancestry.

He said if I have the condition 24x7 to contact him immediately and he’s refer me to someone that would do some laser surgery. A doctor friend has recommended I get an opinion from Wills Eye Hospital.

I happen to notice an ad for Neulasta on TV and they mentioned something about shoulder pain not being good. I went to their web site and here’s what they say, “Report symptoms of abdominal or shoulder tip pain to your doctor immediately.”

Now shoulders always look rounded to me not pointed. I have no clue as to what they mean by shoulder tip pain. So I’ll just report that I experience a dull ache in my left shoulder from time to time.

I’m still experiencing some swelling in my feet, ankles and calves. I’ve been wearing compression hose and, although they are a struggle to put on and take off, I think they help with the swelling. However, I think they’re giving me a puffy face. After all, water is incompressible, squeeze it one place and to goes somewhere else – that’s meant to be a joke.

I’m pleased to hear my serum creatinine is back within standard operating limits. I guess I should work harder on drinking more liquids. Part of the problem is that immediately after poisoning, even plain water is very distasteful.

The only thing else to report is the muscles in the back of my neck where they attach to the base of the skull are sore. This happens every time I get treated.

If I have more to report, I’ll email you. I’ll see you next week.

Posted by The Vorlon at October 3, 2006 8:59 PM

This is a quote from the Eli Lilly oncology website titled "Possible Side Effects of Chemotherapy"

"VISION CHANGES. Some chemotherapy drugs can cause problems with your eyes. If you have redness, increased tearing, the feeling of something in your eye, vision changes, or pain, tell your doctor."

Here's the link... http://www.lillyoncology.com/patients_caregivers/what_side_effects.jsp?reqNavId=4.4.5

Posted by: Karen Abbate at October 3, 2006 9:27 PM

I'm looking forward to hearing what your response from the doctor will be.

Posted by: Depraved Brain at October 4, 2006 7:29 AM

Thanks for the link. My eyes tear a lot in the morning, but I think I've had that for years. The eye doctor gave me a prescription for reading glasses, but said my far sight, while it could use glasses, wasn't really that bad.

I'm hoping for at least a chuckle. I don't really expect to hear anything, but I have an appointment to see him next week. I like to keep him on his toes, but in a friendly way.

Posted by: Ted at October 4, 2006 7:35 AM

So that's why my face looks so puffy in the morning!!! Guess I'd better throw out those panty hose.

And FYI, I need a tissue every morning to wipe my eyes. It's as if I'm crying...I think it's simply my allergies.

Posted by: KATHY at October 5, 2006 9:53 PM